How Sam and his family celebrate Christmas - in pictures
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How Sam Ray and his family celebrate Christmas in their house in Mirdif, Dubai. Sam has Angelman syndrome. Mirdif, Dubai. All photo: Chris Whiteoak / The National -
Sam was diagnosed with Angelman syndrome in 2017 -
He was born in Fujairah -
And has an older sister, Maya -
The decorations are kept inside the kitchen -
AS is associated with delayed mental development, and several notable behaviours especially among kids -
Over the years, Emily has learned to celebrate a 'Sam-proof' Christmas -
The Ray family lives in a villa in Mirdif -
Angelman syndrome is a complex genetic disorder that occurs in 1 in around 15,000 people -
Sam loves going to Santa's grottos, running around in open spaces and meeting new people -
Emily says it is still important for their family to celebrate Christmas in one way or another -
Sam is seven years old -
Emily has to ensure her house is a safe environment for Sam. The chairs are attached to the table -
Emily is active in raising awareness about Sam's rare condition -
This Christmas, Emily and her family are invited for a special lunch hosted by another Dubai resident, who got in touch on Facebook
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