Described as the forgotten Kennedy, Rosemary Kennedy, who suffered from an intellectual disability, was subjected to a barbaric lobotomy while she was awake at the young age of 23.
The procedure left her disabled, unable to talk or move and while she was hidden away for years, it is her tragedy that inspired what is today the Special Olympic Games' Healthy Athlete programme.
Decades later, governments are laying down laws to ensure that all people with intellectual disabilities get the basic right of access to healthcare.
On Monday, Dr Steven Perlman, dentist, founder of the Healthy Athlete programme and global clinical advisor, recalled how one athlete once almost died from a tooth infection and was rushed to the hospital.
“It drives me crazy,” he said. “This shouldn’t be happening. Do you have an idea how much pain he must have been in?"
“An infection like this doesn’t develop overnight. It takes years.”
The athlete had come to the clinic to complain of an ear ache. “He had been in so much pain for years that it became normal,” said Dr Pelrman. “He came in with severe swelling in his face and couldn’t even open his mouth. The tooth was so infected that they couldn’t even remove it.”
The screening programme also allowed 20-year-old Côte d'Ivoire athlete Yann Beugre to hear for the first time after installing him with a hearing aid.
“His family could never afford to get him a hearing aid so he couldn’t hear or speak,” said the team’s manager, Doyn Ali, who said she was in tears watching Yann respond to sound for the first time in his life.
According to studies in the UK, the life expectancy of a male with an intellectual disability is 13 years less than those without, while for a woman it is 20 years less. “But you don’t die of your intellectual disability. You die from preventable medical conditions such as heart disease, bowel obstruction diabetes and so on,” said Dr Perlmen.
The Special Olympics Games was founded by Eunice Kennedy Shriver, the sister of Rosemary. To calm Rosemary’s mood swings, her family, ill-advised at the time, agreed to a lobotomy. Her story is one of America’s biggest tragedies.
“After the lobotomy, the family hid her away in Wisconsin. She was getting the best healthcare that money could buy, obviously, because she is a Kennedy,” Dr Perlmen said.
At one point, dentists decided that Rosemary should have all her teeth removed “but they couldn’t do it because her legal guardian, Eunice Kennedy, refused.”
Instead, she searched the country for a dentist skilled at dealing with people with disabilities. They finally found Dr Perlman, who was based in Boston some 2,000 miles away.
“It was sad. She was 63 and I am a paediatric specialist,” he said.
“When I finished the case, Mrs Shriver wanted to meet me and thank me so she brought me to Washington DC. When she met me she said, 'I want to thank you, but I also want you to teach me about dental problems for people with intellectual disabilities.' I responded, 'I don’t want to talk about dental problems, I want to talk about the health problems of people with intellectual disabilities.'
“I had thought the government took care of it,” said Eunice.
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Eunice asked Dr Perlmen to help improve the health of people with intellectual disabilities and so he piloted the Healthy Athletes program.
“We are changing systems,” he said; however, one of the greatest barriers is training healthcare professional such as nurses, dentists, nutritionists and gynaecologists.
While the University of Sharjah two years ago introduced a dental programme for treating people with disabilities, there are less than five trained specialised dentists in the UAE, said Dr Shadi AlKhatib, lecturer in dental medicine at the university of Sharjah.
Yet all of the athletes screened this year had dental problems that ranged from cavities, infections and missing teeth.
“The treatment of people with disabilities is difficult and it is very risky to sedate them. Oral health is the most unmet need of people with disabilities because most of the time they are poor. The whole issue is that people think that those with disabilities are being taken care of by the Government. Well, the Government doesn’t take care of them ... Physicians, dentists, nurses have no training.”
He says, however, there has been some progress. “In the UAE, I am told that people with disabilities are generally not visible in public and I think this is the reason the UAE wanted this bid – to change that,” he said.
What is a Ponzi scheme?
A fraudulent investment operation where the scammer provides fake reports and generates returns for old investors through money paid by new investors, rather than through ligitimate business activities.
BACK TO ALEXANDRIA
Director: Tamer Ruggli
Starring: Nadine Labaki, Fanny Ardant
Rating: 3.5/5
If you go
The flights
Emirates flies from Dubai to Seattle from Dh5,555 return, including taxes. Portland is a 260 km drive from Seattle and Emirates offers codeshare flights to Portland with its partner Alaska Airlines.
The car
Hertz (www.hertz.ae) offers compact car rental from about $300 per week, including taxes. Emirates Skywards members can earn points on their car hire through Hertz.
Parks and accommodation
For information on Crater Lake National Park, visit www.nps.gov/crla/index.htm . Because of the altitude, large parts of the park are closed in winter due to snow. While the park’s summer season is May 22-October 31, typically, the full loop of the Rim Drive is only possible from late July until the end of October. Entry costs $25 per car for a day. For accommodation, see www.travelcraterlake.com. For information on Umpqua Hot Springs, see www.fs.usda.gov and https://soakoregon.com/umpqua-hot-springs/. For Bend, see https://www.visitbend.com/.
ON TRACK
The Dubai Metaverse Assembly will host three main tracks:
Educate: Consists of more than 10 in-depth sessions on the metaverse
Inspire: Will showcase use cases of the metaverse in tourism, logistics, retail, education and health care
Contribute: Workshops for metaverse foresight and use-case reviews
Developer: Ubisoft Montreal / Ubisoft Toronto
Publisher: Ubisoft
Platforms: Playstation 4, Xbox One, Windows
Release Date: April 10
The Specs
Engine: 1.6-litre 4-cylinder petrol
Power: 118hp
Torque: 149Nm
Transmission: Six-speed automatic
Price: From Dh61,500
On sale: Now
Inside Out 2
Director: Kelsey Mann
Starring: Amy Poehler, Maya Hawke, Ayo Edebiri
Rating: 4.5/5
Sly Cooper and the Thievius Raccoonus
Developer: Sucker Punch Productions
Publisher: Sony Computer Entertainment
Console: PlayStation 2 to 5
Rating: 5/5
Roll of Honour, men’s domestic rugby season
West Asia Premiership
Champions: Dubai Tigers
Runners up: Bahrain
UAE Premiership
Champions: Jebel Ali Dragons
Runners up: Dubai Hurricanes
UAE Division 1
Champions: Dubai Sharks
Runners up: Abu Dhabi Harlequins II
UAE Division 2
Champions: Dubai Tigers III
Runners up: Dubai Sharks II
Dubai Sevens
Champions: Dubai Tigers
Runners up: Dubai Hurricanes
Director: Nag Ashwin
Starring: Prabhas, Saswata Chatterjee, Deepika Padukone, Amitabh Bachchan, Shobhana
Rating: ★★★★
Results
5pm: Reem Island – Conditions (PA) Dh80,000 (Turf) 1,600m; Winner: Farasah, Antonio Fresu (jockey), Musabah Al Muhairi
5.30pm: Sir Baniyas Island – Maiden (PA) Dh80,000 (T) 1,400m; Winner: SSR Ghazwan, Antonio Fresu, Ibrahim Al Hadhrami
6pm: Wathba Stallions Cup – Handicap (PA) Dh70,000 (T) 1,400m; Winner: Astral Del Sol, Sean Kirrane, Ibrahim Al Hadhrami
6.30pm: Al Maryah Island – Maiden (PA) Dh80,000 (T) 2,200m; Winner: Toumadher, Dane O’Neill, Jaber Bittar
7pm: Yas Island – Handicap (PA) Dh80,000 (T) 2,200m; Winner: AF Mukhrej, Tadhg O’Shea, Ernst Oertel
7.30pm: Saadiyat Island – Handicap (TB) Dh80,000 (T) 2,400m; Winner: Celestial Spheres, Gary Sanchez, Ismail Mohammed
COMPANY PROFILE
Company name: Almouneer
Started: 2017
Founders: Dr Noha Khater and Rania Kadry
Based: Egypt
Number of staff: 120
Investment: Bootstrapped, with support from Insead and Egyptian government, seed round of
$3.6 million led by Global Ventures
COMPANY PROFILE
Name: Xpanceo
Started: 2018
Founders: Roman Axelrod, Valentyn Volkov
Based: Dubai, UAE
Industry: Smart contact lenses, augmented/virtual reality
Funding: $40 million
Investor: Opportunity Venture (Asia)
The biog
Simon Nadim has completed 7,000 dives.
The hardest dive in the UAE is the German U-boat 110m down off the Fujairah coast.
As a child, he loved the documentaries of Jacques Cousteau
He also led a team that discovered the long-lost portion of the Ines oil tanker.
If you are interested in diving, he runs the XR Hub Dive Centre in Fujairah
Herc's Adventures
Developer: Big Ape Productions
Publisher: LucasArts
Console: PlayStation 1 & 5, Sega Saturn
Rating: 4/5
Traits of Chinese zodiac animals
Tiger:independent, successful, volatile
Rat:witty, creative, charming
Ox:diligent, perseverent, conservative
Rabbit:gracious, considerate, sensitive
Dragon:prosperous, brave, rash
Snake:calm, thoughtful, stubborn
Horse:faithful, energetic, carefree
Sheep:easy-going, peacemaker, curious
Monkey:family-orientated, clever, playful
Rooster:honest, confident, pompous
Dog:loyal, kind, perfectionist
Boar:loving, tolerant, indulgent
Dates for the diary
To mark Bodytree’s 10th anniversary, the coming season will be filled with celebratory activities:
- September 21 Anyone interested in becoming a certified yoga instructor can sign up for a 250-hour course in Yoga Teacher Training with Jacquelene Sadek. It begins on September 21 and will take place over the course of six weekends.
- October 18 to 21 International yoga instructor, Yogi Nora, will be visiting Bodytree and offering classes.
- October 26 to November 4 International pilates instructor Courtney Miller will be on hand at the studio, offering classes.
- November 9 Bodytree is hosting a party to celebrate turning 10, and everyone is invited. Expect a day full of free classes on the grounds of the studio.
- December 11 Yogeswari, an advanced certified Jivamukti teacher, will be visiting the studio.
- February 2, 2018 Bodytree will host its 4th annual yoga market.
COMPANY PROFILE
Company name: Klipit
Started: 2022
Founders: Venkat Reddy, Mohammed Al Bulooki, Bilal Merchant, Asif Ahmed, Ovais Merchant
Based: Dubai, UAE
Industry: Digital receipts, finance, blockchain
Funding: $4 million
Investors: Privately/self-funded
The specs
Engine: Single front-axle electric motor
Power: 218hp
Torque: 330Nm
Transmission: Single-speed automatic
Max touring range: 402km (claimed)
Price: From Dh215,000 (estimate)
On sale: September
Our family matters legal consultant
Name: Hassan Mohsen Elhais
Position: legal consultant with Al Rowaad Advocates and Legal Consultants.
COMPANY PROFILE
Name: SmartCrowd
Started: 2018
Founder: Siddiq Farid and Musfique Ahmed
Based: Dubai
Sector: FinTech / PropTech
Initial investment: $650,000
Current number of staff: 35
Investment stage: Series A
Investors: Various institutional investors and notable angel investors (500 MENA, Shurooq, Mada, Seedstar, Tricap)
Bridgerton season three - part one
Directors: Various
Starring: Nicola Coughlan, Luke Newton, Jonathan Bailey
Rating: 3/5
COMPANY PROFILE
Name: Haltia.ai
Started: 2023
Co-founders: Arto Bendiken and Talal Thabet
Based: Dubai, UAE
Industry: AI
Number of employees: 41
Funding: About $1.7 million
Investors: Self, family and friends
Kill
Director: Nikhil Nagesh Bhat
Starring: Lakshya, Tanya Maniktala, Ashish Vidyarthi, Harsh Chhaya, Raghav Juyal
Rating: 4.5/5
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