Abu Dhabi resident Amira Al Mubarak, 29, suffered from hepatitis of the liver and died in April.
Abu Dhabi resident Amira Al Mubarak, 29, suffered from hepatitis of the liver and died in April.
Abu Dhabi resident Amira Al Mubarak, 29, suffered from hepatitis of the liver and died in April.
Abu Dhabi resident Amira Al Mubarak, 29, suffered from hepatitis of the liver and died in April.

Brother of Abu Dhabi resident who died of liver disease urges others to get screened


Patrick Ryan
  • English
  • Arabic

The brother of an Abu Dhabi resident who died of hepatitis of the liver has urged others to get screened for the disease.

Ramzi Al Mubarak, 34, lost his sister Amira just a month after she was diagnosed with autoimmune hepatitis, a disease in which the body's immune system attacks liver cells.

She went into a coma in April and tragically died a few days later, aged 29.

Mr Al Mubarak said doctors told the family that his sister, who had an underlying autoimmune condition, could have survived if the disease had been diagnosed earlier.

The doctor told us she might not have died if it had been discovered in its early stages. We want to make sure no family has to go through what we did
Ramzi Al Mubarak

“The doctor told us she might not have died if it had been discovered in its early stages,” he said.

“If this could happen to her it could happen to anyone as she lived such a healthy life.

“We want to make sure no family has to go through what we did.”

Amira worked as a business consultant and was loved by all who knew her, Mr Al Mubarak said.

“Amira was everyone’s friend, she was a kind, passionate and pure soul,” he said.

To mark World Hepatitis Day on Wednesday, Mr Al Mubarak shaved his head in solidarity with those who suffer from the disease and to help bring their plight to attention.

  • Abu Dhabi resident Ramzi Al Mubarak, 34, shaved his head to raise awareness about people who suffer from hepatitis of the liver.
    Abu Dhabi resident Ramzi Al Mubarak, 34, shaved his head to raise awareness about people who suffer from hepatitis of the liver.
  • Amira Al Mubarak died in April aged 29 from viral hepatitis of the liver.
    Amira Al Mubarak died in April aged 29 from viral hepatitis of the liver.
  • Mr Al Mubarak, 34, at Urban Cuts Barbershop in Abu Dhabi.
    Mr Al Mubarak, 34, at Urban Cuts Barbershop in Abu Dhabi.
  • He shaved his head to show solidarity with patients who suffer from liver disease.
    He shaved his head to show solidarity with patients who suffer from liver disease.
  • Mr Al Mubarak urged others to get screened for the deadly disease.
    Mr Al Mubarak urged others to get screened for the deadly disease.
  • Testing and early detection could prevent many deaths, Mr Al Mubarak said.
    Testing and early detection could prevent many deaths, Mr Al Mubarak said.

The World Health Organisation marks World Hepatitis Day on July 28 every year to raise awareness of the disease, including hepatocellular cancer.

The WHO estimates that one person dies every 30 seconds due to hepatitis-related illnesses globally.

The inflammation of the liver is sometimes the result of a viral infection or damage caused by drinking alcohol, but there are other causes too.

Forms of hepatitis can be caught from an infected person, by sharing dirty needles, having contact with infected body fluids or blood, by eating or drinking food or water contaminated with the virus, and also by eating undercooked foods like shellfish.

Dr Amal Premchandra Upadhyay, gastroenterology and hepatology consultant with Aster Hospital in Mankhool, Dubai, said there are A, B, C, D and E strains of hepatitis but it is usually hepatitis B and C that causes chronic infections of the liver.

He said an estimated 257 million globally have hepatitis B and around 887,000 people die each year.

There are nearly 71 million people who live with hepatitis C globally, with an average of 400,000 deaths per year.

Dr Upadhyay also gave a warning about the prevalence of hepatitis C in the UAE, where between 1.3 and 2.9 per cent of the population are infected.

“Hepatitis B and C infections can be prevented by avoiding exposure to needles or sharp objects that might have been exposed to another person’s blood or secretions,” he said.

“Procedures involving needles and skin piercings should only be performed with sterilised equipment in approved centres.

“Chronic hepatitis does not display any symptoms in the early stages so it’s vital people are made aware of the risk it poses and get screened accordingly and any infection is treated at the earliest possible stage.”

He said it was vital to prevent chronic hepatitis, as the consequences could be devastating.

“Patients who have chronic hepatitis are at risk of developing long-term liver diseases and progressive, irreversible liver damage called cirrhosis,” he said.

“Some patients will then also be at risk of developing primary liver cancer.”

Dr Upadhyay said awareness is a key factor in tackling the disease and close family members of patients should get screened.

“It is important to raise awareness among the public as well as physicians so that appropriate populations can be screened and those found to have the infection can be treated,” he said.

“Such awareness can only come through public education and awareness campaigns such as World Hepatitis Day.”

Essentials

The flights

Emirates and Etihad fly direct from the UAE to Geneva from Dh2,845 return, including taxes. The flight takes 6 hours. 

The package

Clinique La Prairie offers a variety of programmes. A six-night Master Detox costs from 14,900 Swiss francs (Dh57,655), including all food, accommodation and a set schedule of medical consultations and spa treatments.

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When: 7pm kick off

Where: Rugby Park, Dubai Sports City

Admission: Free

Online: The match will be broadcast live on Dubai Exiles’ Facebook page

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If a business does not apply for the refund on time, they lose their credit.

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Businesses should continue preparing for the implementation of e-invoicing in the UAE, with 2026 a preparation and transition period ahead of phased mandatory adoption. 

3. More tax audits

Tax authorities are increasingly using data already available across multiple filings to identify audit risks. 

4. More beneficial VAT and excise tax penalty regime

Tax disputes are expected to become more frequent and more structured, with clearer administrative objection and appeal processes. The UAE has adopted a new penalty regime for VAT and excise disputes, which now mirrors the penalty regime for corporate tax.

5. Greater emphasis on statutory audit

There is a greater need for the accuracy of financial statements. The International Financial Reporting Standards standards need to be strictly adhered to and, as a result, the quality of the audits will need to increase.

6. Further transfer pricing enforcement

Transfer pricing enforcement, which refers to the practice of establishing prices for internal transactions between related entities, is expected to broaden in scope. The UAE will shortly open the possibility to negotiate advance pricing agreements, or essentially rulings for transfer pricing purposes. 

7. Limited time periods for audits

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8. Pillar 2 implementation 

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9. Reduced compliance obligations for imported goods and services

Businesses that apply the reverse-charge mechanism for VAT purposes in the UAE may benefit from reduced compliance obligations. 

10. Substance and CbC reporting focus

Tax authorities are expected to continue strengthening the enforcement of economic substance and Country-by-Country (CbC) reporting frameworks. In the UAE, these regimes are increasingly being used as risk-assessment tools, providing tax authorities with a comprehensive view of multinational groups’ global footprints and enabling them to assess whether profits are aligned with real economic activity. 

Contributed by Thomas Vanhee and Hend Rashwan, Aurifer

Profile

Co-founders of the company: Vilhelm Hedberg and Ravi Bhusari

Launch year: In 2016 ekar launched and signed an agreement with Etihad Airways in Abu Dhabi. In January 2017 ekar launched in Dubai in a partnership with the RTA.

Number of employees: Over 50

Financing stage: Series B currently being finalised

Investors: Series A - Audacia Capital 

Sector of operation: Transport

The specs

Engine: 8.0-litre, quad-turbo 16-cylinder

Transmission: 7-speed auto

0-100kmh 2.3 seconds

0-200kmh 5.5 seconds

0-300kmh 11.6 seconds

Power: 1500hp

Torque: 1600Nm

Price: Dh13,400,000

On sale: now

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Starring: Ramy Youssef, Steve Carell, Jason Schwartzman

Director: Jesse Armstrong

Rating: 3.5/5

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Number of Chinese tourists coming to UAE in 2017 was... 1.3m

Alibaba’s new ‘Tech Town’  in Dubai is worth... $600m

China’s investment in the MIddle East in 2016 was... $29.5bn

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Boost to the UAE economy of 5G connectivity will be... $269bn 

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1.30pm Handicap (PA) Dh 50,000 (Dirt) 1,400m

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3pm Conditions (TB) Dh 100,000 (D) 1,950m

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3.30pm Handicap (TB) Dh 76,000 (D) 1,800m

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Winner Bladesmith, Tadhg O’Shea, Satish Seemar.

4.30pm Handicap (TB) Dh 68,000 (D) 1,000m

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Indoor Cricket World Cup - Sept 16-20, Insportz, Dubai

16 Indoor cricket matches are 16 overs per side
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9 There have been nine Indoor Cricket World Cups for men. Australia have won every one.
5 Five runs are deducted from the score when a wickets falls
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Scoring In indoor cricket, runs are scored by way of both physical and bonus runs. Physical runs are scored by both batsmen completing a run from one crease to the other. Bonus runs are scored when the ball hits a net in different zones, but only when at least one physical run is score.

Zones

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Chef Nobu's advice for eating sushi

“One mistake people always make is adding extra wasabi. There is no need for this, because it should already be there between the rice and the fish.
“When eating nigiri, you must dip the fish – not the rice – in soy sauce, otherwise the rice will collapse. Also, don’t use too much soy sauce or it will make you thirsty. For sushi rolls, dip a little of the rice-covered roll lightly in soy sauce and eat in one bite.
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Starring: Stephanie Beatriz, Michael Stahl-David

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1921

1888

Updated: July 27, 2021, 2:58 PM